La configuración de la Vida Cotidiana en familias con niños o niñas diagnosticados con Trastorno Generalizado del Desarrollo (TGD) y/o Trastorno del Espectro Autista (TEA)
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2019
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Escuela de Trabajo Social. Facultad de Ciencia Política y Relaciones Internacionales. Universidad Nacional de Rosario
Resumen
Descripción
El propósito de este trabajo es recuperar
algunas claves de la investigación131 que
realicé en la Facultad de Trabajo Social
de la Universidad Nacional de Entre Ríos.
La misma fue dirigida por la Magíster en
Trabajo Social María Alfonsina Angelino
y tuvo como objeto de estudio “La
configuración de la Vida Cotidiana en
familias con niños o niñas diagnosticados
con Trastorno Generalizado del Desarrollo
(TGD) y/o Trastorno del Espectro Autista
(TEA)”. La elección de estos diagnósticos
respondió a la masificación de los mismos
en la actualidad y a su irrupción en la
infancia. Este trabajo apuntó a conocer y
analizar las rupturas y continuidades que
se manifestaron en la cotidianeidad de la
familia a partir del diagnóstico de su hijo.
A fin de responder a este objetivo, realicé
una investigación de tipo cualitativa que me
permitió analizar e interpretar no solo las
tres entrevistas en profundidad realizadas
a madres de niños diagnosticados con
TGD y/o TEA, sino también las charlas
informales al interior del Grupo TGD
Padres Santa Fe, la asistencia a reuniones
y las observaciones. La hipótesis que
sostuve fue que la vida cotidiana en las
familias se encontró modificada a partir
del diagnóstico, volviéndose estructurada,
reglada y terapéutica. No solo ello quedó
evidenciado durante todo el trayecto de este
trabajo, sino que también pude advertir las
nuevas prácticas cotidianas que empezaron a
formar parte de la familia a fin de responder
a los tratamientos que necesitan sus hijos.
The purpose of this work, is to recover some keys of the investigation that I made in the Faculty of Social Work at the National University of Entre Rios. It was directed by the Magister in Social Work María Alfonsina Angelino and had as object of study “The configuration of the daily life in families with kids that has been diagnostic with generalized disorder of developing or autism spectrum disorder”. The selection of this diagnoses respond to a current situation: its massification and irruption in childhood. This work aimed to discover and analyze the ruptures and continuities that manifested in the daily life of the family after their child’s diagnosis. In order to achieve this objective, I conducted a qualitative research that allowed me to analyze and interpret three in-depth interviews with mothers of children diagnosed with TGD and / or ASD, informal talks within the TGD Group Parents Santa Fe and meetings attendance and observations. The hypothesis held was that the daily life of families was modified once given the diagnosis, becoming structured, regulated and therapeutic This was evidenced throughout the course of this work and I could also notice the new daily practices that began to be part of the family in order to respond to the treatments that their children need.
The purpose of this work, is to recover some keys of the investigation that I made in the Faculty of Social Work at the National University of Entre Rios. It was directed by the Magister in Social Work María Alfonsina Angelino and had as object of study “The configuration of the daily life in families with kids that has been diagnostic with generalized disorder of developing or autism spectrum disorder”. The selection of this diagnoses respond to a current situation: its massification and irruption in childhood. This work aimed to discover and analyze the ruptures and continuities that manifested in the daily life of the family after their child’s diagnosis. In order to achieve this objective, I conducted a qualitative research that allowed me to analyze and interpret three in-depth interviews with mothers of children diagnosed with TGD and / or ASD, informal talks within the TGD Group Parents Santa Fe and meetings attendance and observations. The hypothesis held was that the daily life of families was modified once given the diagnosis, becoming structured, regulated and therapeutic This was evidenced throughout the course of this work and I could also notice the new daily practices that began to be part of the family in order to respond to the treatments that their children need.
Palabras clave
Vida cotidiana, Familia, TGD - Trastorno Generalizado del Desarrollo, TEA - Trastorno del Espectro Autista, Family, Daily life